Stillbirth Advocacy Working Group
Global scorecard to track progress towards milestones of Lancet Ending Preventable Stillbirth’s Call to Action now available.
- The Ending Preventable Stillbirths Scorecard– Full version
- The Ending Preventable Stillbirths Scorecard – Summary version
SAWG blog series
The latest blog post ‘Skill-building on Perinatal Death Reviews: A Facilitator Guide and resources’ by Dr. Tedbabe Degefie Hailegebriel is now available
Many thanks to those who have already written posts, which go on Save the Children’s Healthy Newborn Network (HNN) website. Check out prior posts:
- Skill-building on Perinatal Death Reviews: A Facilitator Guide and resources – Tedbabe Degefie Hailegebrie, June, 2019
- Stillbirth – A silent cry for more attention – Linda Vanotoo, April 2019
- Awareness as the first step to prevention: prenatal infection and stillbirth – Amy Perhach, February 2019
- From invisibility to visibility: Global initiatives make progress in incorporating stillbirths into their publications – Paula Quigley, December 2018
- Understanding the reasons for hospital and home births in Haiti – Alka Dev, November 2018 (no post in October 2018)
- Challenging the stigma around stillbirth: Sharing stories as awareness – Maria Luisa Tejada de Rivero Sawers, July 2018 (no posts in May or June 2018)
- Data matters: Asking for what we need to end preventable stillbirths – Shannon Maloney, April 2018 (no post in March 2018)
- Preventing stillbirths with stronger perinatal death review – Sara Nam, February 2018
- The time is now to bring stillbirth out of the shadows – Debbie Haine Vijayvergiya, January 2018
- Removing fear from discussions of the connection between fetal movement monitoring and stillbirth – Danielle Pollock, December 2017
- Addressing a root cause of stillbirths in Nigeria: The shortage of female health workers – Paula Quigley, November 2017
- Stillbirth, migration and ethnicity: The bells toll for thee – Maryam Mozooni, October 2017
- Let’s end the silence around stillbirth – Lauren Christiansen-Lindquist, September 2017
Other opportunities for action
- ISA supports the global call to action for the full recognition and inclusion of sexual and reproductive health and rights (SRHR) in universal health care (UHC). Sign on here to lend your own organization’s support.
- WRA “What women want – demands for quality healthcare for women and girls” survey seeking to hear from >1million women and girls worldwide asking them what their one request for quality reproductive & maternal healthcare services is, launched April 11th 2018. Opportunity to engage to advocate for stillbirths, including completing the survey and possibly a blog (WRA have added codes for stillbirths to be able to capture these responses). Survey extended to March 2019.
- Women Deliver conference in Vancouver in June 2019: anyone going should have pre-conference discussion on to maximize our presence there. Will be an excellent platform for awareness around the Global Scorecard. Joy Lawn leading session on “Who has the power in pregnancy?” with speakers from Uganda and S Africa slated to attend
- Countdown 2030: we need to ensure links with indicators on SBs. First tier of indicators now agreed, do not include stillbirths; working on 2nd tier
Recent stillbirth-related global publications/ events/ initiatives
- April 2019 – Latest blog post ‘Stillbirth – A silent cry for more attention‘ by Linda Vanotoo, a Ghanaian physician and founder of Ghana’s first bereavement support organization.
- February 2019 – Blog post from the Healthy Newborn Network (HNN) titled ‘Global initiatives make progress in incorporating stillbirths into their publications‘
- Independent Accountability Panel (IAP) published its 2018 report in September ‘PRIVATE SECTOR: WHO IS ACCOUNTABLE? for Women’s, Children’s and Adolescents’ Health’ with a single brief mention of stillbirths.
- September – Levels and Trends in Child Mortality – no mention of stillbirths despite new ongoing work to include stillbirths in UN-IGME core workplan
- September – WHO recommendations on home-based records for maternal, newborn and child health stillbirth mentioned in 1 study only. Not mentioned otherwise.
- June – Joint statement by WHO, UNFPA, UNICEF, ICM, ICN, FIGO and IPA on ‘Defining competent maternal and newborn health professionals’. Background document includes explicit integration of stillbirth into core competencies including respectful antenatal, postpartum and bereavement care and shared decision-making.
- Every Newborn Progress Report 2018 published by UNICEF/WHO on May 2 Fantastic to see such progress – but still much to do.
- HNN (Healthy Newborn Network) launched a midwifery page on May 5th for International Day of the midwife.
- May 2018 – HNN launched a survey to identify core recommendations for stillbirth and bereavement care
- February – UNICEF Every Child Alive Initial ½ page section in 44 page report on ‘Stillbirth: A tragedy shrouded in silence’
- Blog post from the Maternal Health Task Force – 2.6 Million Reasons to Invest in Stillbirth Estimates
- WHO launched intrapartum guidelines for a positive pregnancy experience in February 2018. Little stillbirth-specific guidance included.
Upcoming stillbirth-related events
- PMNCH Partner’s Forum in Delhi 12 – 13 December 2018 – pre-meetings for WHA2019 statement on midwifery education, SEARO TAG meeting with stillbirth focus (Joy Lawn to be external expert to advise this group).
- International Women’s Day, 8 March 2019
- PSANZ in Australia, 17-20 March 2019
- World Health Assembly, Geneva, 20-28 May 2019
- Women Deliver, Vancouver, Canada: 3-6 June 2019: Concurrent session planned on Pregnancy: who holds the power? to include major focus on stillbirth with panel including bereaved parents.
- Stillbirth Summit, Minneapolis, 19-21 June 2019
- ISA conference Madrid 4 – 6 October 2019 –Please consider attending the only global stillbirth-focused conference! Parents especially warmly welcomed! Conference will be streamed in English and Spanish.
Outputs from the SAWG in last year
- Written comments sent to WHO on VA autopsy in WHO document Making every baby count: audit and review of stillbirths and neonatal deaths
- Presentation made to the Australian Senate Select Committee on Stillbirth Research and Education
- SAWG submission to the Committee can be found here.
- Countdown to 2030 blog post available here.
- Commentary on Every Woman Every Child progress report: available in BJOG. We are really pleased to see that it was featured in the PMNCH February 2018 E-blast.
- Second anniversary of Lancet’s Ending preventable stillbirths series: short article and video released by Lancet/LSHTM along with social media kit here
- Abstracts on the global Ending preventable stillbirths scorecard submitted to FIGO Rio 2018, ISA Madrid 2019, Group B Strep July 2019
- Side bar on SAWG activities submitted to WHO for ENAP progress report
- PMNCH E-blast—Make sure you sign up to receive these!
- HNN—sign up to become a member!
- Would any of your colleagues/ contacts be interested in joining – please let us know by email: Blencowe@lshtm.ac.uk and email@example.com
List of acronyms (let us know if there is an acronym we should add to this list!)
- BJOG: British Journal of Obstetrics & Gynecology
- CVRS: civil vital registration statistics
- DAI: Development Alternatives, Inc.
- DHS: Demographic and Health Survey
- FIGO: International Federation of Gynecology & Obstetrics
- HNN: Healthy Newborn Network
- HQ: headquarters
- ICM: International Confederation of Midwives
- ICN: International Council of Nurses
- IGME: Inter-Agency Group on Mortality Estimation
- IMPROVE: IMproving Perinatal mortality Review and Outcomes Via Education
- IPA: International Pediatrics Association
- ISA: International Stillbirth Alliance
- LMIC: low- and middle-income countries
- LSHTM: London School of Hygiene & Tropical Medicine
- MCH: maternal and child health
- MOH: Ministry of Health
- MNH: maternal & newborn health
- MNCH: maternal, newborn and child health
- MPDSR: Maternal and perinatal death surveillance and response
- NCD: non-communicable diseases
- NN: neonatal
- PH: public health
- PM: post-mortem
- PMNCH: Partnership for Maternal, Newborn and Child Health
- PND: perinatal deaths
- PSANZ: Perinatal Society of Australia and New Zealand
- SB: stillbirth
- SEARO: WHO Southeast Asia Regional Office
- TOR: terms of reference
- UNFPA: United Nations Population Fund
- UNICEF: United Nations Children’s Fund
- UN-IGME: United Nations Inter-agency Group for Child Mortality Estimation
- VASA: Verbal Autopsy and Social Autopsy
- WD: Women Deliver
- WHA: World Health Assembly
- WHO: World Health Organization
- WRA: White Ribbon Alliance
|VISION: A world in which preventable stillbirths no longer occur, and care for families and health workers after stillbirths is compassionate, high-quality, and culturally appropriate.
1. Develop and support a network that advocates for stillbirth prevention and care within the existing global architecture (Global Strategy, Every Newborn Action Plan, Quality-Equity-Dignity, etc.)
2. Ensure key evidence and data are visible, resourced, tailored appropriately for key audiences, and linked to accountability at country level and globally
3. Seize key moments to advocate for stillbirth prevention and care
4. Empower “bottom-up” advocacy from parents and parent groups
ABOUT THE SAWG: